Jackson’s test results (from the slew of tests I mentioned before) are finally in.
We now know that his Autism does not stem from a genetic issue or predisposition. Of course, with that answer came 1,000 more questions.
If it’s not genetic then what caused it?
Are there more tests available to find out what caused it?
What is the next step?
Ever since the appointment where Jackson’s doctor explained the test results to me, all these questions swirled in my head.And the unfortunate thing is that at this point, there aren’t more tests available (though experts are always working to develop new ones) and so at this point there is no real way to know what his Autism stems from.
And that really leaves us right back where we started.
So we are sticking with what we know works for now. Lots of therapy and school.
The good news is that the other tests the doctor ran (for some other health and genetic issues) all came back normal. I’m grateful to know this, and am trying to focus on the positive as we move forward.
Of course, it’s easy to want a concrete answer, something to blame for his Autism so to speak…right after he was diagnosed I would tell myself that having the answer would make my grief easier to bear. But as time has passed and I’ve come to accept our life with Jackson’s Autism, my anger has dissipated and I am more focused on devoting my time to his treatment instead.
The truth is that thanks to his amazing school program and the best therapist EVER, Jackson has made an incredible amount of progress since his diagnosis. And that’s where my hope comes from.
Seeing him learn to point his finger to request something for the very first time at 6 years old brought tears to my eyes. And in that moment I was reminded that all the hard work and energy that I put into his treatment is what really matters.
Slowly but surely, we will win this race together.